Tuesday, September 26th, noon - 1:00 pm.
Reframing Change at ALL Levels
to Support Families Across the LifeCourse
Oklahoma History Center
800 Nazih Zuhdi Drive
Oklahoma City, OK 73106
Click here to register.
Summary: Oklahoma is a member state in the National Community of Practice for Supporting Families with 16 other states to enhance policies and practices that impact families with members with intellectual and developmental disabilities (I/DD) across the lifespan. This work is guided by Charting the LifeCourse framework, developed to help individuals and families at any age or stage of life think about what they need to know, identify how to find or develop integrated supports, and discover what it takes to create a “good life” both now and in the future. This presentation will introduce the Charting the LifeCourse framework as a foundation for working with individuals with I/DD and their families, exploring the effect of past and current policies and practices, the significant role families play across the lifespan, as well as the concepts of “ALL”, life stages and domains, vision and trajectory, the “3 buckets”, and the integrated supports star. Real life examples of implementation of the framework will be shared.
Crystal Bell is the mother of Peyton, a 13-year-old with a Down Syndrome diagnosis, Conner, a 12-year-old, with an Autism diagnosis, and Lilly, an energetic, “typically” developing two-year-old. Crystal had been an active volunteer at Missouri Family to Family Information Center, housed at the University of Missouri-Kansas City Institute for Human Development before joining their team full-time last fall. She is an active, trained, Sharing Our Strengths Peer Mentor and Family Leader within the Missouri Family to Family organization, as well as a 2016 graduate of the Missouri Developmental Disabilities Council’s Partners in Policymaking Program, a leadership and advocacy training program for parents of children with developmental disabilities as well as adult self-advocates. Crystal is a lifelong learner whose education and trainings span all life stages and domains and include training on Wrightslaw, Tools of Choice and Care Coordination and Advocacy. Through her extensive training and personal implementation of the LifeCourse Tools and Framework since early 2013, Crystal and her family have experienced the first-hand transformations that occur when an individual and their family are given the permission to dream.