(a) Legal Base.  Section 1020 of Title 56 of the Oklahoma Statutes authorizes the Oklahoma Department of Human Services (OKDHS) to provide community services for persons with Prader-Willi Syndrome.

(b) Applicability.  The rules in this section apply to services provided through OKDHS, Developmental Disabilities Services Division (DDSD) to persons with Prader-Willi Syndrome through funds appropriated by the Oklahoma Legislature.

(c) General information.  Services for people with Prader-Willi Syndrome are intended to meet the specialized needs of persons with Prader-Willi Syndrome.  OKDHS provides a monthly payment to the contracted residential provider to:

• (1) ensure each service recipient participates in regular recreation, leisure, and exercise activities at home and in the community;
• (2) provide program coordination staff who serve no more than eight service recipients in a 40-mile radius.  The program coordinator must visit each home at least four times per month when the service recipient is present, and one of the visits must occur during night-time hours;
• (3) assess the service recipient's progress and challenges related to activities of daily living and safety and provide a written summary to the case manager 30 days prior to the annual Individual Plan (Plan) meeting;
• (4) ensure program coordination staff attend a Prader-Willi Syndrome conference annually and provide the direct service staff at least one hour per month of Prader-Willi Syndrome related training;
• (5) ensure service recipients are provided with specialized diets as specified in their Plan;
• (6) ensure service recipient's exercise program is implemented and provide access to exercise equipment and classes as identified in their Plan;
• (7) work with the service recipients and their teams to develop a plan for the replacement of property damaged by  a service recipient at no cost to OKDHS;
• (8) assist service recipients in conducting safety and evacuation drills per OAC 340:100-5-22.1; and
• (9) ensure that service recipient's home is safe and secured as defined in their Plan.

(d) Eligibility.  To be eligible for Prader-Willi Syndrome services, each person must:

• (1) provide documentation from a licensed physician that confirms the diagnosis of Prader-Willi Syndrome as evidenced by the DNA Metholation Analysis;
• (2) be receiving Home and Community Based Waiver Services (HCBS) or be on the Request for Waiver Services List per OAC 317:40-1-1 and determined eligible for HCBS unless admitted to the program prior to July 1, 1997; and
• (3) be 18 years of age.

(e) Waiting list.  When resources are unavailable to offer services through the Prader-Willi Syndrome program applicant names are maintained on a statewide waiting list.

• (1) The waiting list is maintained by the residential programs supervisor for DDSD, or designee.
• (2) The waiting list is maintained in chronological order based on the date of receipt of a written request for Prader-Willi Syndrome services.
• (3) The waiting list is administered by DDSD uniformly throughout the state.
• (4) An applicant is removed from the waiting list when:
• (A) determined ineligible for services; or
• (B) the applicant cannot be located by OKDHS.
• (5) When an applicant is offered Prader-Willi Syndrome services but declines or is not eligible due to age, the applicant maintains their position on the waiting list.

(f) Scope.  Reimbursement for Prader-Willi Syndrome Services is provided at a rate approved by the Oklahoma Commission for Human Services within the program capacity determined by legislative appropriation.

(g) Service expectations.  The provider agency ensures that:

• (1) all applicable rules of OKDHS and the Oklahoma Health Care Authority (OHCA) are met including:
• (A) OAC 340:100-3-24, Quality assurance;
• (B) OAC 340:100-3-38, Staff training;
• (C) OAC 340:100-3-40, Community records system;
• (D) OAC 340:100-5-22.1, Community residential supports;
• (E) OAC 340:100-5-26, Health services;
• (F) OAC 340:100-5-32, Medication administration;
• (G) OAC 340:100-5-34, Incident reporting; and
• (H) OAC 340:100-5-50 through 100-5-58, Individual planning;
• (2) each service recipient is weighed at least weekly;
• (3) all food and money are safeguarded to ensure a proper diet and maintenance of health;
• (4) transportation to and from vocational activities, community outings, and medical appointments is provided in accordance with the Plan and Plan of Care;
• (5) staff implement periodic room, clothing, and baggage searches as necessary to ensure that food and money are not present as outlined in their Plan; and
• (6) the staffing ratio is appropriate to ensure service recipient's safety as defined in the Plan.  Staff are trained and competent to meet the needs of service recipients with Prader- Willi Syndrome.

(h) Room and board.  Each service recipient is responsible for room and board per OAC 340:100-3-4.

• (1) When the home is owned or leased by the service recipient or their family or guardian, the agency develops a financial agreement for payment of household expenses by the service recipient per OAC 340:100-5-22.1.
• (2) When the home is owned or leased by the provider agency, the agency may charge a room and board payment of all but $100 per month of the service recipient's income up to a maximum of 90% of the current Social Security Supplemental income rate.  In these circumstances the agency must comply with OAC 340:100-6.