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Private and Non-Profit Organizations
- Family Voices in Oklahoma (Link opens in new window)
- The state chapter of this national grassroots organization provides information and education about ways to assure and improve health care for children with disabilities and chronic conditions
- Sickle Cell Disease Association of America, Inc (Link opens in new window)
- Find information including research, legislation and many other topics of interest about sickle cell
- JD McCarty Center
- While JD McCarty provides other services, Title V funds are used to make respite care available to families of children with special health care needs
- The Oklahoma Family Network (OFN) (Link opens in new window)
- An independent, statewide, non-profit resource for families who are raising children with special needs, from prenatal through adulthood, by providing information, education and emotional support
- Oklahoma Parent Network (OPN) (Link opens in new window)
- A grassroots organization that offers a caregiver/provider directory, news and an e-mail list so families and professionals can interact with one another
- Oral Health Care For Children With Special Health Care Needs (Link opens in new window)
- A guide for family members, caregivers and dental providers was put together by the Oklahoma Children’s Oral Health Coalition to help dental practitioners and families make oral care and dental visits as painless as possible for children with special health care needs. There is a printable PDF version as well as a Word version that allows for skipping to specific chapters of the guide. The resources page includes a link to SoonerCare’s list of dentists. The guide is housed on the Oklahoma Association of Community Action Agencies’ Web site. Scroll down the opening page until you see the title (about half way down the page).
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Hospitals
- Children's Medical Center Neonatal Intensive Care Unit (Link opens in new window)
- Get information about Children's Medical Center of Hillcrest Healthcare System in Tulsa. It receives Title V funds for providing intensive care to newborns who need it
- Developmental and Behavioral Pediatrics Section (Link opens in new window)
- OU Health Sciences Center in Oklahoma City is the home of several programs receiving Title V funds including SoonerSUCCESS, OASIS, Family Partners and receives Title V funds for services for autism and sickle cell.
- OU Neonatal Intensive Care Unit (Link opens in new window)
- OU Medical Center Chldren's Hospital in Oklahoma City receives Title V funds for providing intensive care to newborns who need it
- Oklahoma Infant Transition Program OITP (Link opens in new window)
- OU Health Sciences Center in Oklahoma City receives Title V funds to help families navigate the Newborn Intensive Care Unit (NICU) experience and plan for their return home and to the community.
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Federal and State Government
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